AMD Toolkit Home

Welcome to
RI’s AMD Toolkit.

An educational toolkit for a multi-stakeholder audience related to Age-related Macular Degeneration and Geographic Atrophy.

Dry AMD, Wet AMD and Geographic Atrophy (GA) are conditions with differing signs and symptoms that require different interventions. It is very important for patients and healthcare providers to know how to spot the warning signs to ensure the best possible management for each person.

About This Toolkit

This initiative was conceived of and developed by a global partnership of patient representatives, including Retina International and supported by F. Hoffmann-La Roche and Novartis. It is designed to be a central information hub bringing users the most up to date information on the various forms of Age-related Macular Degeneration (AMD).

As patient representatives, we have witnessed an increase in awareness of AMD among the public at large over the past decade, however the different stages and complexity of the disease are not well understood.

Through this toolkit, users can read about the latest scientific developments in the field and learn what impact these developments may have on them and their families.

We hope that this toolkit is useful for you and look forward to your feedback. Enjoy your visit.

Retina Action

A Global Partnership for a Lifetime of Vision

Retina Action is a global coalition of vision and ageing groups representing the voice of people affected by vision loss and the aging population. Our DED and AMD Toolkits make up a part of this coalitions capacity building initiatives.

Retina Action  calls upon governments to:

  1. Develop, and where developed, implement screening programs for Age-related Macular Degeneration and Diabetes-related Retinopathy.
  2. Sustain and prioritise screening programs for Age-related Macular Degeneration and Diabetes-related Retinopathy during times of crisis;
  3. Improve awareness on the issues of digital poverty in the development of remote screening and eye healthcare programs;
  4. Prioritise the vaccination of the already vulnerable vision loss community against COVID-19; and
  5. Promote the inclusion and wellbeing of the ageing vision loss community.

 

Members of Retina Action:

Retina International 
Prevent Blindness USA 
International Federation on Aging Australia
Retina France
ProRetina Germany 
Canadian Council of the Blind  
Blind & Low Vision New Zealand 
European Council of Optometry and Optics 
European Alliance for Personalised Medicine 

About Retina International

Retina International is a global umbrella organisation for patient-led charities and foundations who support research into rare, genetically inherited and age-related retinal conditions.

RI believes that education leading to participation is a key driver in successful innovation.

Retina International strives to – Educate its community who in turn will be the educators of their peers, of all relevant stakeholders and decision makers and will utilise the understanding to Participate as informed actors in development of research, through the provision of advice, and perspective to all stakeholders and decision makers allowing the community to better Innovate to support and promote research for unmet need.

To learn more, visit our website: retina-international.org